SJS KIDS SUPPORT

SJS Kids Support

lighting the way to hope!

 

 Ian is a 10 year old boy who had TEN at age three from an antibiotic.  He is determined to "be happy" and his idea of heaven is to spend time with friends, just laughing and enjoying their company.  He loves amusement rides and water parks and is totally in love with his dog "George" - a female Bichon Shih Tzu cross.  If I had to say one thing about Ian, it is that he has a laugh that could light up the world!

 

Hello,
My name is Valerie and I am 9 years old, and in the 4th grade. I live in Michigan. I had SJS in January of 2008 when I was 8 years old. Valerie

 

Kolby lives in Pennsylvania and has experienced SJS three times at the age of 7, 8 and 10 years.  He is currently a very active 11 year old that enjoys all sports and hunting with his father. We are very blessed by God to have Kolby in our lives.  He is a true Angel on Earth!

  

This is Shane Angelo, he had SJS/TEN in August of 2003 when he was 21 months old from Phenobarbital & Phenytoin. He spent 2  1/2 weeks in the ICU and 9 weeks in the Burn Unit at the Hospital for Sick Children in Canada. He is a happy boy and doing great at school. He is our Hero, our Angel. We are very thankful, to have him in our lives.

 

 

Derek is a 17-year-old high school junior who got SJS in February 2005 as a result of a combination of ibuprofen and mycoplasma pneumoniae.  He spent one week in Children's Hospital of Pittsburgh.  Derek enjoys playing ice hockey, fly fishing, golfing, and hunting.  He has a promising future ahead of him as he begins making application to colleges in pursuit of obtaining his goal of working in a conservation/fisheries management career

Jeremy was seven years old in 2004 when he got SJS after taking Bactrim for a staph infection. He spent three weeks in the Children’s Hospital of Austin. He has some tissue damage in his eyes, and learned how to put in his own contact lenses when he was only eight! This photo was taken the year after SJS when Jeremy served as a Miracle Child for the Children’s Miracle Network to help raise funds for children’s hospitals. Today Jeremy is in middle school and doing great. He enjoys tennis and computer games.

This is a picture of Miranda Warr.  Miranda had SJS last August at the age of 4.  She had a reaction to antibiotics.  We are grateful she has had no long term effects

This is Matthew at age 5. This photo of Matthew was taken 1 week before he contracted SJS from either Motrin and/or Zithromax. The day after this photo he became ill with an ear infection and high fever. 4 days after he started the Zithromax he came down with symptoms of SJS. Thankfully the wonderful doctors at the Hunterdon Medical Center in Flemington NJ were familiar with SJS sent him immediately to the The Children's Hospital at St. Peters University Hospital in New Brunswick, NJ.  Matthew is doing wonderfully now... Thank you for this wonderful website. Matthew is very happy to know that there are other children out there that he can relate too with his experience

This is Mahayla Kanaugh. She is 5 years old and had SJS when she was 15 months old. She got it from taking Phenobarbital. She was in the hospital for about a week and as her mother I thought it was the worst thing ever but I soon found out, through website's like this one, that she could have been a lot worse. She is definitely a miracle from God and I am so thankful that she is doing well with out any major lasting effects from SJS. She is noe in pre-school and doing wonderfully.
Miranda is a 12 year old who contracted SJS in November of 2004. She was diagnosed with mycoplasma pneumonia on 11/9/04 and perscribed Childrens Motrin and Zithromax. On 11/14/04, she was admitted to Children's Hospital of Pittsburgh for Stevens-Johnson Syndrome with ocular and oral involvment where she received a 5-day treatment of IVIG infusions. Since her discharge she has undergone surgery on her tear ducts to remove scar tissue build up. Though the surgery was not 100% effective, Miranda lives the normal life of a pre-teen and does not let it stop her.

 

Hi! My name is Caleb McCourry and I am 10 years old from Norman  Oklahoma. I had SJS in October of 2007. I got ill with what the doctor  thought was Mycoplasma Pneumonia and was put on Zithromax. I started 
to show signs of SJS after 5 days but was misdiagnosed by my doctor  fortunately my mom researched my symptoms and came up with SJS. My   parents took me to The University of Oklahoma Children's Hospital 
where they said it was indeed SJS. I was in the hospital for 17 days.  I am well now and have no side effects thank goodness. I like 
football, playing with my friends and riding my bike.

 

This is Shane Quandt the year after he spent one month in the Nebraska Medical Center Burn Unit with TENS.  He was 3 years old and his TENS was caused from Children's Motrin.  He was very lucky and the only lasting side effect besides skin scarring is that his gums have receded and he will require skin grafting from his palate to his lower gums for more teeth support.  This was caused from the massive loss of mucosa in his mouth and
esophagus.  He is now in kindergarten and is a constant reminder of the most important miracle we have ever witnessed!

Lily is 11 years old and had SJS in Sept 2005. She is doing fairly well.She has had 4 operations on her eyes, continues to have GI problems and her poor skin is fragile and dry. She is so funny and quick to laugh and brings joy to all she meets!


Austin is a 14 year old from northeast Ohio. He had SJS in November, 2007 and February, 2009 (yes, with a full mouth of braces too!). The first time the doctors did not diagnosis him with SJS - but now the 2nd time, knowing what SJS is, he definitely had it in '07 too. This second time was much worse. Five months later we would have never thought things would be back to "normal" after 2 weeks in the hospital and a long recovery. Things will never be quite "normal" again for Austin or any SJS victim or family as we will always wonder if he'll ever get it again. The doctors "think" it was from a virus....although he had been taking ibuprofen for a week before his symptoms this time (don't remember last time) for a swollen knee that was a sports injury. Needless to say - no ibuprofen or sulfa based drugs for him ever again! He is another kid who never complained at all through his whole ordeal.

 

 

My name is Caylynn, I had SJS/TENS when I was 10 years old. I have had it 8 times since then and now I'm turning 16. It has effected me in many ways. For instance I was a lot less shy when I was 9 and 10 until I got it SJS. Then I was more shy and less confident after words.Everybody started noticing my scars and I was worried.I thought my life would never be the same. Really now that I look at it, it's not. I have dry eyes and double vision. But now I'm 15 and working. I am shouting out to whoever has had sjs cause I feel for them. I know what they went threw and are going threw.
 
Hi, my name is Stephanie Zundel and I'm 13 years old living in New Jersey. I got SJS/TENS two weeks before my third birthday. I got SJS from Children's Motrin. I lost 97 percent of my skin, all my hair, my nails, my voice, and my eyesight. I was in the hospital in the burn unit for two months. The doctors thought I was going to die because I had extreme third degree burns all over my skin and I was wrapped in gauze with many different tubes in me. I couldn't move or talk. It was a devastating time for my family, but a miracle happened and God helped me gain my strength and I survived. I have many scars and I'm still blind. My nails didn't grow back right because they look like I bite them, but I'm thankful that I survived.

 

Seth is a 15 year old boy that got SJS July of 2008 and spent 3 weeks in the hospital.  Seth is an amazing kid that has never complained through this whole ordeal.  He continues to enjoy most things he did before SJS; hunting, snowmobliling, and all lake sports.

 
 
 
This is Brendon Brown.  He had TENS in March of 2007, a few weeks after turning 3 years old.  He is 4 years old now and overall, is doing well. 

 

Six year old Ian from Mexico spent 2 months in the intensive care unit 
in Galveston with SJS. Pictured here with his little brother 4 year old Andre enjoying
a good time off the cost of Cancun!


Lacey Heskett