top of page
Sunset Views

SJS Kids Support

Lighting the way to Hope


Making Change Possible

SJS Kids Support was founded to be a resource for SJS kids. Many SJS children have experienced SJS themselves or had a family member with SJS. They struggle to understand what has happened. Our mission is provide support, and explain SJS to kids in terms they can understand. We work to promote public awareness of SJS. We believe it is important for kids to be able to understand and explain SJS to others. It helps with their emotional healing process as well.

Boy Playing with Toy Boat

What is SJS?

SJS stands for Stevens Johnson Syndrome. SJS is an allergic reaction to medicine. 


Like a knight in shining armor, our immune system stands guard to protect us against infections and viruses. It helps fight off any invaders that might make us sick. When a person has Stevens Johnson Syndrome their immune system for some reason makes a mistake and turns on itself like a fire breathing dragon causing blisters like a burn.  Our immune system is unable to stop this reaction.


SJS patients feel very sick and they stay in the hospital until they are well enough to go back home. They are wrapped in bandages like a mummy and given special formula in a feeding tube. Sometimes they need help breathing so they have to use a machine to help them breathe better.

Kiddie Pool Fun


What are the signs of SJS?

  • Rash, blisters, or red splotches on skin

  • Long lasting fever

  • Blisters in mouth, eyes, ears, and nose

  • Swelling of eyelids

  • red eyes

  • feeling like you have the Flu

  • being on a new medicine

Side Effects

  • Alopecia- loss of hair

  • Asthma- trouble breathing

  • Blindness- unable to see anything but light and color

  • Cough that never goes away

  • Photophobia- when light hurts person eyes

  • Dry eyes

  • tearing because of dry eyes

  • Blurry vision

  • Hearing loss

bottom of page